I'm in a very bad cycle right now with my narcolepsy symptoms. I'm going to bed around 11:00 PM and waking up at 4:00 AM. Since I have some energy in the morning, I'm trying to plan my day around the the 3 or 5 naps I will need to get through the day. I'm exercising (walking, light yoga) but still dragging through the day. It's like I have one or two good days, and then all hell breaks loose. I really wish they could come up with a way to increase the hypocretin in the brain. Along with the genetic marker and the MSLT that proves I have narcolepsy with cataplexy, I'm experiencing highs and lows all day long. Just venting -- hope you all understand. Just had to get it off my chest.
always feel ok about venting. that's one of the best things about having people to talk to. :)