I have been struggling with this for a long time and no doctor seemed to help me so I thought I would come to the source. I will give a little background and then ask my questions. It is long but I want to make sure I give as much detail as possible. Thanks for your help in advance.
My normal day would be: wake at 6am, fall asleep at work, come home at 4pm, fall sleep until 7pm, eat dinner and go to bed at 9pm. The sleep was uncontrollable. Like my body had more control then my mind.
In 2006, I got a job where I traveled a lot (drove 4 hours to St Louis and back every week). I would fall asleep while I was driving. I would have to pull over and sleep half way thru my trip. I knew this was not safe so I had a sleep study done. They said I had no apnea but I snored. So they removed my tonsils, uvula, adenoids, straightened my septum and lowered my turbines. This did not help. In 2010, I had two more sleep studies and they showed sleep apnea. I was setup with a CPAP machine. This did not help.
In 2014, I started to fall asleep in local traffic (which I don't normally do) and decided to see a neurologist. She did a night time study and the next day a daytime study. After a full night of sleep with a CPAP (with no apnea), the next day I slept all 5 naps and fell asleep in under 3 minutes for all 5. My doctor said I am incredibly tired but since I did not dream she could not diagnosis it as narcolepsy. She did prescribe me 400mg of Provigil a day.
The Provigil is great and I feel great during the day. The problem I am having is waking up in the morning. I am getting that "I cant control my body" feeling. So after a full nights sleep I cant wake my body up. I always thought this was just me being lazy but I know I need to get up and I cant.
I told my neurologist and she referred me to an ENT for a device consult called Inspire. The Inspire device is a pacemaker that has a lead attached to the nerve that controls the tongue. When you stop breathing the lead sends a shock to the nerve to relax the tongue so you can breath without waking up. After a minor procedure a couple weeks I was told the device would work for me.
I go in tomorrow for my follow-up and to see if I should schedule the procedure. My question is
1) Does what I am experiencing sound like a sleep apnea issues?
2) Has anyone experienced this? If so what do you do to wake up in the morning?