Dear Friends and Family of LivingWithNarcolepsy,
February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities!
IN THIS ISSUE
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2. Featured Group: Musical Dedications
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Welcome New Members
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As we ‘March’ on to the next month, we encourage everyone to do continue doing the same as we strive to level up by making stronger and more dynamic communities and, as a consequence, a stronger and more dynamic Ben’s Friends as well. How can you have a share in this?
1. Tell others about BensFriends.org– Spread the word around by telling everyone you know about Ben’s Friends – your family, your close friends, your doctors, even your Facebook friends! Mention us on your blog posts, on your e-mails, on your twits, updates, whatever it’s called on your social networks. Share our link, share the video posted on Youtube, like our pages.
2. Be involved.– Regularly read posts on your site; comment on them. Share your experiences to those who need support. Throw an inspiring line or two. That’s what these sites are about.
3. Be Interested. – Click on the other community links shown at the side of your home page and be inspired by similar stories of courage and determination the side. Share an article you found on interesting to your friends.
Again, we thank you and commend you for your participation in this. This may yet be the beginning of the biggest campaign to provide support to patients of rare diseases and their families!
We at Ben’s Friends will continue to be at your help.
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Featured Group: Musical Dedications
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John Denver once said, "Music does bring people together. It allows us to experience the same emotions. People everywhere are the same in heart and spirit. No matter what language we speak, what color we are,
the form of our politics or the expression of our love and our faith, music proves: We are the same."
Can you dedicate one inspiring song to someone special to you today? Music indeed brings us closer to each other!
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Interesting Discussion
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Do you have a great medical doctor to recommend? Do you personally know one good physician? Can you help someone in our community find a caring and amazing doctor?
Share your doctor experience with all of us as you join our discussion entitled "Recommend a Doctor, Therapist, or Clinic".
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Interesting Blog Post
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What Links Swine With Car Accidents? If reports in Sweden and Malaysia are to be collated, one answer could be narcolepsy. How?
The growing suspicion that a swine flu vaccine (Pandemrix) may be directly culpable for the increase in number of narcolepsy cases in Sweden is shown by the report on Sweden's news. While in Malaysia, authorities cite OSD (Obstructive Sleep Disorder) for prevalence of traffic accidents while leaving out narcolepsy, an even greater danger as it has no cure unlike OSD. Read more as Armando shares in his blog post.
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Community Stats
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Total Unique Visitors to Site: 20
Peak Number of Members as of March 1, 2012 :5
If you know someone who can benefit from Bensfriends, invite them to join our amazing community and tell them how our community had been your source of strength and great support!
Warmest Regards,
Your Community Moderators